A unique collaboration between the International Congress on Children’s Bone Health (ICCBH) and the European Calcified Tissue Society (ECTS).  The workshop will discuss “Optimizing the clinical management in rare bone diseases”.

Do you have an interesting clinical case or research project in the field?  Submit an abstract to ECTS 2022 main programme and get the chance to be included in the Workshop Programme.

Thanks to the support of ICCBH, Travel Grants are also available to New Investigators presenting an abastract in the field of rare bone diseases or pediatric bone diseases.

A separate registration form from the ECTS 2022 Main Programme is possible.  Visit the Registration Page for more information.


Friday 6 May 2022

Messukeskus Siipi Conference Centre, Helsinki, Finland

Workshop Chairs:  Natasha Appelman-Dijkstra (The Netherlands); Nick Bishop (United Kingdom); Outi Mäkitie (Finland).

How to participate

The ECTS-ICCBH Workshop will be held on 6 May 2022, in conjuction with the ECTS 2022 Annual Congress in Helsinki. 


  • € 150,00 for ECTS Members
  • € 200,00 for non Members
  • € 100,00 in combination with ECTS 2022 congress registration

Visit the Registration Page for more information.

Programme Overview

For more details, please visit the ECTS 2022 Scientific Programme.

11:00 – 11:30

Management of pregnancy and delivery in patients with rare bone disease

11:30 – 12:00

Pre- and postnatal care of a child with rare bone disease – lessons from type II collagenopathies

12:00 – 12:30

Guidelines for management in children with achondroplasia

12:30 – 13:00

How to optimize health in adults with achondroplasia?

13:00 – 14:00

Networking Lunch

14:00 – 14:25

New treatment for autosomal dominant hypocalcemia

14:25 – 14:50

Denosumab or antisclerostin to treat bone fragility in children?

14:50 – 15:15

Skeletal and extra-skeletal health in adults with OI

15:15 – 16:00

Oral presentations selected from ECTS 2022 abstracts